Get Involved

A Global Movement Without Borders

Whether you’re a patient, GP, spinal surgeon, physiotherapist, nurse, academic, student, caregiver, or concerned ally—you can be part of this mission.

The CES Initiative is for everyone, everywhere. We believe that collaboration, compassion, and shared learning can transform the future of CES care around the world.

Be part of the solution

You can support the CES Initiative by:

  • Signing up to our Collaboration Charter and Mission
  • Sharing CES awareness materials in your country or profession
  • Partnering on research, education, or advocacy projects
  • Lending your story, skills, or voice to support the community

There are no barriers—just shared purpose and a global vision for a better future for all affected by CES.
Free from conflict. Free from politics. Focused on people.
Together, we are the change.

Mission of the CES Initiative

The CES Initiative exists to transform the global understanding, diagnosis, and care of Cauda Equina Syndrome (CES) through lived experience, education, and collaboration.

We unite patients, healthcare professionals, researchers, and advocates worldwide to raise awareness, reduce diagnostic delays, and ensure every CES patient receives timely, compassionate, and informed care.

CES Initiative (Cauda Equina Syndrome) – Vision and Values

Vision Statement

A world where Cauda Equina Syndrome is universally understood, rapidly diagnosed, and optimally treated—empowering every individual affected to live with dignity, support, and hope.

Core Values

  1. Early Recognition Preserves Quality of Life
    We champion global education and awareness to ensure timely diagnosis and intervention—because minutes matter in CES.
  2. Equity in Access
    We strive for equitable access to accurate information, specialist care, rehabilitation, and support—regardless of geography or socioeconomic status.
  3. Patient-Centred Purpose
    Our work is grounded in the lived experience of those with CES. Their voices shape our priorities and actions.
  4. Collaboration Across Borders
    We unite global stakeholders to share knowledge, data, and best practices that improve outcomes.
  5. Innovation in Research and Care
    We support the advancement of research, diagnostics, treatments, and assistive technologies that improve quality of life.
  6. Empowerment Through Education
    We empower patients, caregivers, and professionals with the knowledge to act with confidence and compassion.
  7. Compassionate Advocacy
    We advocate with empathy, amplify underserved voices, and challenge stigma—ensuring CES patients are recognised and respected at every level.
Download our Global Charter